Adrian Goretzki is a lawyer & patient advocate specialized in the area of rare diseases. In years 2010-2018, a leader of Polish Association for Patients with Primary Immunodeficiencies ‘Immunoprotect’, former member of executive board of international umbrella association – the International Patient Organization for Primary Immunodeficiencies (IPOPI). For his successful patient advocacy, Adrian has been given Luciano Vassali Award in 2014, the University of Silesia Rector’s Award in 2020 and RARE Champion of Hope award in 2022. In his foundation, the Healthcare Education Institute, he ensures the best possible standards of care and therapy for people with chronic and rare diseases in Central Eastern Europe. To fulfill this purpose, the foundation’s main focus is on preparing studies and reports and providing education of patient advocacy groups, physicians, and other healthcare professionals. Since the start of the Russian invasion of Ukraine, his foundation supports Ukrainian refugees with rare diseases in obtaining highly specialized treatment in the European Union and also helps Ukrainian hospitals taking care of patients with rare diseases. See: EDUinstitute.org
